Social Organization and Public Policies for Reducing Infant Mortality Due to Sickle Cell Anemia
The Sickle Cell Anemia Association of the State of São Paulo is a
nonprofit organization made up of friends, families, and sickle-cell
patients. Its goals include social mobilization of patients so that they
can develop their individual and collective potential.
Institution responsible:
Sickle Cell Anemia Association of the State of São
Paulo (AAFESP – Associação de Anemia Falciforme do
Estado de São Paulo)
Partnering institutions:
Pan-American Health
Organization; Commercial Social Service of São Paulo (SESC-SP – Serviço
Social do Comércio de São Paulo); Adolph Lutz Institute (Instituto
Adolfo Lutz); Children’s Cancer Research Center (Centro de Pesquisa
Oncológica Infantil); CECOI; University of Campinas (UNICAMP –
Universidade Estadual de Campinas); Ashoka—Innovators for the Public;
Fetal Medicine and Human Genetics Institute (Instituto de Medicina Fetal
e Genética Humana), Hemoglobinopathy Laboratory of São Paulo State
University (Laboratório de Hemoglobinopatia da UNESP); Accounting
Consultancy SNM (SNM Consultoria Contábil); Ministry of Health of Brazil
(Ministério da Saúde).
Video about the project:
Watch the video
Additional information:
ODM Brasil website
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